Antix Clothing & Dolle Models are putting on a fundraising bikini car wash and sausage sizzle on Sat May 25th starting at 10am, On the block of land beside Beerwah Hotel Drive thru bottle shop.
We are trying to raise funds for two local Sunshine Coast 3yr old boys who have specialised needs JM Vision – find their page on facebook. At the bottom of this email is more info about their conditions.
We are asking everyone and anyone (if you can think of anyone else who might be keen to help please forward this email to them)
We are looking for 5 – 6 major sponsors ($500 or more) These beautiful people will have their logo on all of our advertising mediums, flyer, signage, newspaper editorials, facebook promotions etc
We are also looking for donations to be put into our multi draw raffle. Or any $$$$ donations for the boys. Contact me for more info.
Please help us support these two little local boys to have a happier life and lighten the financial burden for their parents by helping us contribute to the specialised equipment they need. Im 100% behind helping out in our back yard where we know exactly where the money is going and who its helping.
We are also looking for photographers willing to donate their time.
Below I have some info about the boys we are raising the funds for.
JM Vision! Sunshine Coast’s own Jaxson & Miller! These boys are two friends. At 3 years old, Jaxson has been diagnosed with Cerebral Palsy, Vision Impairment & Septo Optic Dysplasia. And Little Miller is undiagnosed.
Our Mission is to Create awareness!! Reason being? There is no funding for research for Septo Optic Dysplasia because it is such a rare illness (1 in 10,000 newborns)..
But we would like to help, and raise money for the families of these two adorable little boys that are both suffering from some life changing illness'. With this illness comes certain needs and requirements for them to be able to live a happy and safe life. These needs being items such as special needs beds, helmets, special needs play equipment, walking aids, aid puppy's and much much more!
Miller is currently undiagnosed, a few of his symptoms include Ataxia, autistic features, low muscle tone, poor depth perception, poor understanding and awareness of his surroundings, global development delays, bilateral strabismus & speech delay.
Depth perception is the ability to judge objects that are nearer or farther than other objects. Depth perception is not present at birth. It is not until the third to fifth month that eyes are capable of working together to form a three dimensional view of the world.
Ataxia "lack of order" is a neurological sign consisting of lack of voluntary coordination of muscle movements. Ataxia is a non-specific clinical manifestation implying dysfunction of the parts of the nervous system that coordinate movement, such as the cerebellum. Several possible causes exist for these patterns of neurological dysfunction.
ABOUT CEREBRAL PALSY -
Cerebral palsy is a physical disability that affects the way that a person moves.
An Australian child is born with cerebral palsy every 15 hours. It is the most common physical disability in childhood.
Cerebral palsy is caused by an injury to the developing brain, which usually occurs before birth.
It is a lifelong condition, but its impact varies from person to person. It can be very mild - e.g. a weakness in one hand - or more severe, where a person has almost no voluntary movement.
There is no known cure and, for most people with cerebral palsy, the cause is unknown.
25% of children with cerebral palsy are unable to walk and 60% have impaired speech. There are also a number of other conditions associated with cerebral palsy, including epilepsy and intellectual disability.
ABOUT VISION IMPAIRMENT
Vision impairment is defined as a limitation of one or more functions of the eye (or visual system).
The most common vision impairments affect:
The sharpness or clarity of vision (visual acuity)
The normal range of what you can see (visual fields)
Legal blindness in Australia means that someone with vision impairment, even with glasses or contact lenses, can see an object at 6 metres that someone without vision impairment could see from 60 metres. This is called 6/60 vision.
Normal vision is 6/6 vision (or 20/20 in imperial measures).
There are numerous causes of vision impairment.
ABOUT SEPTO OPTIC DYSPLASIA
Septo-optic dysplasia is a disorder of early brain development. Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia.
The first major feature, optic nerve hypoplasia, is the underdevelopment of the optic nerves, which carry visual information from the eyes to the brain. In affected individuals, the optic nerves are abnormally small and make fewer connections than usual between the eyes and the brain. As a result, people with optic nerve hypoplasia have impaired vision in one or both eyes. Optic nerve hypoplasia can also be associated with unusual side-to-side eye movements (nystagmus) and other eye abnormalities.
The second characteristic feature of septo-optic dysplasia is the abnormal development of structures separating the right and left halves of the brain. These structures include the corpus callosum, which is a band of tissue that connects the two halves of the brain, and the septum pellucidum, which separates the fluid-filled spaces called ventricles in the brain. In the early stages of brain development, these structures may form abnormally or fail to develop at all. Depending on which structures are affected, abnormal brain development can lead to intellectual disability and other neurological problems.
The third major feature of this disorder is pituitary hypoplasia. The pituitary is a gland at the base of the brain that produces several hormones. These hormones help control growth, reproduction, and other critical body functions. Underdevelopment of the pituitary can lead to a shortage (deficiency) of many essential hormones. Most commonly, pituitary hypoplasia causes growth hormone deficiency, which results in slow growth and unusually short stature. Severe cases cause panhypopituitarism, a condition in which the pituitary produces no hormones. Panhypopituitarism is associated with slow growth, low blood sugar (hypoglycemia), genital abnormalities, and problems with sexual development.
The signs and symptoms of septo-optic dysplasia can vary significantly. Some researchers suggest that septo-optic dysplasia should actually be considered a group of related conditions rather than a single disorder. About one-third of people diagnosed with septo-optic dysplasia have all three major features; most affected individuals have two of the major features. In rare cases, septo-optic dysplasia is associated with additional signs and symptoms, including recurrent seizures (epilepsy), delayed development, and abnormal movements.
Septo-optic dysplasia has a reported incidence of 1 in 10,000 newborns.
There are so many charities out there, and so many people who need your help!
Jaxson & Miller are two of those Millions of people.. Who desperately need our help so that they can live a Normal life!
Thank you so much for taking the time to read this and any help your can offer will be greatly appreciated. Spread the word!
JM Vision Local Fundraiser
Beside Beerwah Hotel Drive Thru Bottle Shop, Beerwah
Saturday May 25th
Starting at 10am
Beside Beerwah Hotel, Beerwah
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